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demyelinating

demyelinating

by david @ middleway david @ middleway

Chronic inflammatory demyelinating poly-radiculo-neuropathy (CIDP) is a neurological disorder characterized by progressive weakness and impaired sensory function in the legs and arms #demyelinating // Made at BlueskyFeeds.com

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Cristina
@sleepypotatoes.bsky.social
about 21 hours ago
Sadly I've been having these symptoms since before I started ivig, but they've def gotten worse over the last couple of years. Thanks! I hope so too. I see my neuro next week and also my rheumatologist so imma ask if he'll send a referral over. I just took a Zyrtec and pepcid to see if it'll help.
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VikingNerd
@vikingnerd.bsky.social
1 day ago
I wonder, could you have an allergy to something in your specific brand you are getting for IVIG? I hope it gets sorted.
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Tom Yates
@tomayates.bsky.social
2 days ago
Glad to see @dremilymcd.bsky.social raising awareness of Immortal Time Bias at #ESCMIDGlobal2026 It's important and REALLY COMMON! Here is a link to our paper on ITB in observational studies estimating the survival 'benefits' of IVIG in streptococcal toxic shock syndrome
Quantifying Potential Immortal Time Bias in Observational Studies in Acute Severe Infection

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Quantifying Potential Immortal Time Bias in Observational Studies in Acute Severe Infection

Immortal time bias is a spurious or exaggerated protective association that commonly arises in naive analyses of observational data. It occurs when people receive the intervention because they survive...
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Trish
@boboo52.bsky.social
2 days ago
@tomshakespeare.bsky.social if you ever visit Tunbridge Wells (it’s not as bad as folk think!) the stickers on local shops to say assistance dogs all welcome are down to me. Brother-in-law has Spud from Canine Partners - paralysed from neck down overnight by GBS, got a bit better now CIDP.
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Seth Trueger
@mdaware.org
3 days ago
or perhaps IVIG? @jamanetworkopen.com
Intravenous Immunoglobulin Alone for Coronary Artery Lesions in Kawasaki Disease

jamanetwork.com

Intravenous Immunoglobulin Alone for Coronary Artery Lesions in Kawasaki Disease

This randomized clinical trial assessed whether a combination of high-dose aspirin and intravenous immunoglobulin provides greater benefit than intravenous immunoglobulin alone in preventing the devel...

Coronary-artery lesions develop in 10 to 20% of patients who receive standard treatment for Kawasaki disease. Whether adjunctive glucocorticoids reduce lesion formation is unclear. Research findings for a phase 3 trial are summarized in a new Quick Take video. nej.md/4tMcEnI

A visual representation of a randomized trial of adjunctive prednisolone for Kawasaki disease.
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@vasculitides
@vasculitides.bsky.social
4 days ago
Predictive value of the lactate dehydrogenase to albumin ratio for coronary artery lesions and IVIG resistance in Kawasaki disease
Predictive value of the lactate dehydrogenase to albumin ratio for coronary artery lesions and IVIG resistance in Kawasaki disease - PubMed

pubmed.ncbi.nlm.nih.gov

Predictive value of the lactate dehydrogenase to albumin ratio for coronary artery lesions and IVIG resistance in Kawasaki disease - PubMed

Predictive value of the lactate dehydrogenase to albumin ratio for coronary artery lesions and IVIG resistance in Kawasaki disease
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Ryan O'Keefe
@rokeefemd.bsky.social
4 days ago
The specific autoantibody target in immune-mediated neuropathies dictates treatment; non-complement-fixing IgG4-mediated diseases like many nodopathies require B-cell targeted therapy (Rituximab) rather than IVIG or steroids.
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Ryan O'Keefe
@rokeefemd.bsky.social
4 days ago
Daily Pearl(s): Autoimmune Nodopathy (Anti-Neurofascin Associated) The failure of a patient with presumed GBS to respond to IVIG is a critical red flag that should prompt consideration of GBS mimics, particularly autoimmune nodopathies.
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Big Sky Passenger Rail Authority
@bigskyrail.bsky.social
4 days ago
The Big Sky North Coast Corridor is moving forward and so is the national conversation about the future of passenger rail. bigskyrailmt.gov/spring-2…
A graphic showing the Big Sky Passenger Rail Authority logo above a map of the Big Sky North Coast Corridor potential route, stretching from the Pacific Northwest through Montana to Chicago, with overlapping CIDP corridors and a detailed legend.
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Ranked News
@rankednews.bsky.social
5 days ago
YOLO star Drogba cries out as his condition worsens after father’s death, seeks support: Ghanaian actor John Peasah, known as Drogba from the youth series YOLO, has issued an urgent appeal for financial and emotional assistance due to a worsening demyelinating disease… ranked.news/647070?u=b
Article image
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